In case you want to see what SMA is like, at least kind of and get an idea of what the families, and more importantly the children go through, you should watch Extreme Makeover Home Edition this Sunday, October 5th as they help a family with two children afflicted with the disease. I love the show and am so grateful that they help out families who are struggling, regardless of the circumstances. It is on Sunday, on ABC 7 pm MST. Besides, the Jonas Brothers are going to be on.
From the preview, the girls appear to have Type II or Type III, which is very different from Type I that Dylan had. But, it will still give a good sense and hopefully draw a lot more attention to the disease.
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